We were staying in a cabin in the middle of nowhere the first time my baby had a seizure. We had no car and no cell phone reception. I was cradling my child, screaming into the woods for help. Screaming. It was the most terrifying event of my life. And when she finally stopped seizing, I thought she had died. I lost it.That was in June. Rio has had three seizures since then - all febrile or related to a fever. Because the last one was complex and she had issues with breathing, we all agreed to do some further testing. We had a 48 hour EEG at All Children's last week.
My poor baby had, what seemed like, 800 electrodes glued onto her head. Her head was wrapped like a mummy and she was hooked up to a pack of wires and tethered to a machine. We were told that we had to follow her around carrying the pack of wires behind so they wouldn't become disconnected. Trying to follow a 20 month old around is like trying to catch the RoadRunner! We had to come up with a solution and fast! We got one of those toddler backpacks and the electrode pack fit in just perfectly. Rio was able to move about freely.
So far, the test looks normal and we're happy about that. We're told that she'll probably keep having seizures whenever she spikes a fever and will eventually grow out of it (around age 5.) Back to the bubble for us! Germs are our enemies.
I haven't written about this until now because I don't like to dwell on scary experiences, but I thought I'd reach out into the universe and maybe find someone else who has shared a similar experience who might have some tips for me.
I need some ideas for entertaining a 20 month old that are both fun and stimulating. We cannot go to parks, group events, etc. with all this swine flu hanging around. We read, do flash cards, play with toys, play outside on the play set, go for walks, bike rides, and drives. That eats up a couple of hours....just kidding. Any ideas would be greatly appreciated!
